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Q&A for How to Write About Disability
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QuestionIs capitalizing the "a" in disabled (as in "disAbled") offensive?Community AnswerIt is definitely controversial and potentially offensive. Some writers use it, but others say it should be avoided, since it's easy to see the capitalization as a "cutesy" rendition that's similar to "handicapable" or "differently abled".
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QuestionWhat about hidden disabilities?Community AnswerThe same guidelines apply to people who have "invisible" disabilities, or disabilities that aren't easy for passersby to notice. This guide is written with both visible and "invisible" disabilities in mind.
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QuestionHow can I make a disabled person fully able to do their own work independently?Luna RoseTop AnswererThis depends on what the work is and what the person's abilities are. Some people can do it all themselves, some need support on learning it and are fine then, some will always need help doing it, and some people can't do it at all. It greatly depends. Ask the disabled person what they think they can manage, and what type of support they might need. Often, it involves the help of a disability expert. Let the individual and their team (if there is one) figure it out, and don't push too hard. Sometimes people truly can't do things, or it would be dangerous to try, or it would take too much energy that they need for other things.
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QuestionPeople around me keep using the term "special needs." I have tried to tell them that the term shouldn't be used, but they don't believe me. What should I do to convince them?TobiasTop AnswererIt's possible they grew up around the term and/or don't realize the potentially offensive connotations around it. You could tell them something along the lines of: "I believe you should stop using the term 'special needs' and instead start using the terms 'has a disability' or 'disabled', as many people find that term offensive." If that's not working, you can also include reasons people find the term offensive (e.g. "The term suggests that people with disabilities have needs that are non-essential").
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QuestionWhat words should I use if my story is narrated by someone new to disability without ruining its attitude?Luna RoseTop AnswererI'm actually writing a story ("Thousand Dollar Friend") with a main character who doesn't know much about disability. In terms of terminology, I usually take the "lucky guess" route, where the main character (MC) uses the right words. I also show her learning new things, and learning that the stereotypes she had heard were wrong. It's also okay to show your main character asking questions to another character, or on a search engine, to learn more. A respectful attitude is what counts most, so if you show your character to be a person who isn't fully educated but treats the disabled characters with kindness and dignity, that's what is most important.
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QuestionWhat is the spoon theory?Luna RoseTop AnswererThe spoon theory describes how disabled people need to budget energy throughout the day. Imagine having only a set amount of "spoons" when you wake up. Any activity (showering, making food, getting dressed) costs spoons. Once you have zero spoons, you're done. While non-disabled people have so many spoons that these activities aren't a big deal, for a disabled person, they take a lot of energy. A disabled person has to make difficult choices about what is worth getting done. On some days, you have more than on others. Christine Miserandino has an [http://www.butyoudontlooksick.com/articles/written-by-christine/the-spoon-theory/] essay on her invention of the term.
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QuestionCan I call myself an "autor", if I am an autistic author?Luna RoseTop AnswererThat's clever! You'll probably need to explain it to people in order for them to understand, but it might elicit some smiles and laughs.
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QuestionDo amputees prefer person-first or identity-first language?Luna RoseTop AnswererIdentity-first language (amputee) seems to be more common than person-first language (person with an amputation). I could not find much of an amputee community online, but from what I did find, identity-first language is the norm. Thus, it's probably reasonable to either use a mix of person-first and identity-first language, or use identity-first language unless the specific person prefers otherwise.
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QuestionCan I use "suffers from" if I am refering to mental illness?Flobow TrustCommunity AnswerUnder most circumstances, using the words "suffers from" can give a negative connotation. Thus, it would be preferable to just state the fact that an individual has a mental illness. If you are writing or talking about an individual, it could be very helpful to describe how this illness effects them. A lot of what you want to say or write will depend on your purpose of sharing information about this individual.
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QuestionWhat if I'm telling the story in the eyes of a person who is 100% new to disability?Community AnswerConsider doing plenty of research. This will help you to understand better.
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QuestionAlthough nobody I know seems to have a problem with it, for some reason I have always hated the term "special needs" and I don't know why. How can I have people respect my opinion?Community AnswerJust explain to people that you prefer another term, and give them your reasons. I'm not a fan of the phrase special needs either, partly because the word 'special' has been negatively talked about over the years. Help them to understand that just because some people, or even the majority, are okay with a word doesn't mean you have to be.
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QuestionIs the word "autist" offensive?RubyTop AnswererThe word "autist" can be considered offensive. Some autistic people prefer to reclaim it for describing themselves, but similar to the word "queer", it can be considered offensive when being used to describe others, unless they say otherwise. A better term might be "autistic person", or "on the autistic spectrum". Some people also use the words "aspie" or "autie" to describe themselves, though some people argue that they are too cutesy, and may come across as patronising.
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QuestionI'm still a little bit confused with the inspiration porn thing. Can you explain it to me a little bit more?RubyTop AnswererInspiration porn is when people talk about disabled people as if they are an inspiration for living their typical life. Although, in hindsight, it can seem like a nice thing, it usually implies one of the following: that disabled people are superhuman, or you should pity disabled people, or that it is out of the ordinary for disabled people to be good at things. For example, making it seem as if it is amazing and abnormal thing that an autistic person gets a job. People who use this approach usually send out the message "if a disabled person can do this, why can't you?", implying that disabled people are, by default, less successful than non-disabled people.
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QuestionI'm writing a story about an autistic girl who uses robotics (which plays a role in the story). How can I express that she is autistic without explicitly saying "she is autistic"?ArianaLeNoirCommunity AnswerLook up symptoms of autism. Autistic people often have trouble understanding non-verbal things like facial expressions. They can also take things literally and having hard time understanding jokes or sarcasm.They are often sensitive to loud noises or bright lights. Symptoms like these, plus special interest, will reveal her autism to the reader. But saying that she is autistic isn't a bad thing - you have to show she has autistic traits for it to be convincing.
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QuestionI'm writing a fantasy novel about vampires where one is paralysed from the waist down in an accident. How can I write this still being realistic but keeping it in a fantasy setting?TobiasTop AnswererSince this is specifically a vampire, maybe you could think about how a vampire would adapt to paralysis - rather than walking, they could occasionally fly, for example. With that being said, avoid making such a thing appear to completely make up for the disability (for instance, maybe flying is difficult for any number of reasons), or having the disability be completely cured (even in a fantasy setting where something such as magic could be used). WikiHow has an article called "How to Write a Disabled Character", which you may find interesting to read for more information.
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QuestionIs progeria a disability?Community AnswerProgeria is a rare physical disorder that gives the person a strange appearance, such as looking like an alien. People with progeria have short lifespans, usually no longer than 19 years. If you'd like to learn more, watch videos on people who have this disorder, like Adalia Rose.
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QuestionIs epilepsy a disability?RubyTop AnswererYes, epilepsy is considered a disability as people with the condition are usually quite affected by it in their everyday life.
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QuestionI'm confused. The article says that disabled people can do stuff abled people can. I don't mean to be ableist, but they must not be able to do something or it would cancel out the word disabled. Will you please clarify this?RainyTop AnswererDisability is a spectrum, and everybody on it has different capabilities, strengths, and support needs. For example, a person with epilepsy may not be able to watch certain movies (because flashing lights trigger their seizures), while a deaf person may be able to watch those movies as long as the subtitles are turned on. Someone paralyzed from the waist down will typically need a wheelchair to get around, and they may be good at reading, while someone with dyslexia may be able to walk and need help with reading.
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